We had refocused our approach to getting rid of the fluid. We are attempting to direct it toward the lymph nodes and take it out that way so ever since last Friday, I've been doing a series of massages, compression stockings and deep breathing. I was gung ho! Thoroughly believed. Hope was back. I had a new direction. Wahoo!!!
So I worked hard this week, making sure I did everything religiously, faithfully. And I prayed like crazy and asked for God's help. And on Friday, I called physical therapy to ask if I should be seeing some change/movement. Rather, I had gained a little bit of weight and was struggling to breathe everyday, with my organs pushing against each other and no comfortable position to be in. I now weigh what I did when I delivered my 3 boys and really look like I'm 9 months pregnant. Becky said no, I should be seeing progress by now and it looked like my liver was so shot that this wasn't working now either.
I was so disappointed and I think I'm still in denial because I feel like that was my last chance. No more tricks up our sleeves. So I keep massaging and breathing and eating protein and drinking protein drinks and trying to coax my body to absorb the protein.
On Tuesday, I go to IU Med Ctr to meet with my previous oncologist and another surgeon to talk about whether or not a liver transplant is even an option. At first, I wasn't sure I had it in me to go through something that big...and my body may not be...but right now it's all I have so I'm going to listen and learn and see what we can do to make it happen.
And every Thursday now, I go to Ball Hospital to get a Procrit shot that will help my body produce more red blood cells. That will give me more energy.
I'm continuing to pray, to stay positive and to see friends. You give me strength...you help me get chores done so I don't worry about them or try to overdo it. You make me laugh and you spend time just sharing your life with me.
Please pray with me...stay positive with me...and make me laugh. Be well and take care of yourself.
Lenette
1 comment:
Lenette,
There is always hope as long as we have faith and I know you have faith. Keep doing what you are doing and we will get past this hurdle. I didn't hear from you so I didn't know if you wanted me to stop by again to help you with some of this. Give me a call and you know I will be there.
Hope you have a good day today and the pain is a bit more bearable.
love,
Barb
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